Monthly Archives: May 2016

I wrote a post not too long ago about how some days Down syndrome deflates me. Some days I cry and I worry and I’m afraid of what will be.

Today is NOT one of those days:

Today I wear waders as my news feed is flooded with stories about people with Down syndrome crushing it. Every story has been about a young man and I see Judah’s future in their successes. Some  are graduating college and getting jobs. Some are writing stories about themselves and advocating and I even saw the first male model with Down Syndrome….damn I thought that might be Judah’s claim to fame.

Today I saw a beautiful Albert Einstein quote and tears just about spilled. A million yeses  to all of this.

“Everybody is a Genius. But If You Judge a Fish by Its Ability to Climb a Tree, It Will Live Its Whole Life Believing that It is Stupid”

Today I read a story from a man who has a son with Down syndrome ( I’m telling you, these stories were everywhere today…like little signs of God winking at me) His son asked his mom what was wrong with him. He asked if he was in a car accident and why he was made wrong. Ugh, my heart needs a band-aid….so his mom told him that everyone is made different and that his strength is loving people. She said he was better at loving people than anyone she knew. Seriously folks, I am bawling as I write this!!! Now I’ve heard the rumor that people with Down syndrome have the biggest hearts around. I cannot yet confirm or deny but I get to see first hand with my own superhero son.


Today I was talking to a colleague about our kids. She told me her daughter is going to the senior ball with a boy who has Down Syndrome. I will put that good feely right in my  very full pocket thank you very much.

Today I looked at Judah and all his wild ways with adoration. I laughed as he put his hands in the toilet and swiped everything off the counter. I thought….this is not Down syndrome, this is my son’s crazy, cool ,charisma and it destroys me with smiles.

Today Judah’s new therapist sent me a text saying he was beautiful and that she loved his personality

Today I see our future family of 5 and I am finally excited. I am no longer overwhelmed, scared, or panicky. I am finally thrilled and I am anxious for our little family to hand out our abundance of love to its newest member.

Today I have more than hope. Today I am soaring through clouds of possibility and grinning like a giddy school girl.

Today I am Ice cube.

Today is a good day.