When I first met you, I was scared of you. I’m ashamed and pained by my admission but it is true. I didn’t know what having you would entail and selfishly, how it would affect my life…..but I fought for you anyway. Not because I’m some sort of extraordinary super mom, but because I’m  your mom. Period. That’s it. I couldn’t bear for others to cause you pain, I cringed to think some may not understand you,or that someone could dare to not want the very best for you. You were so helpless and little. Plus, you were mine… so, I started writing and advocating and taking giant leaps out of my comfort zone to protect you. It was fierce and It was instinct. Those days are long gone now…..

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Now I fight for you because I am absolutely mad, crazy, and wild about you! I wouldn’t take that extra chromosome from you if you were holding it in your open hand. I love you so damn much it hurts. It’s weird to think that I would never take Down syndrome from you, but I couldn’t. It is part of what makes you so delicious. You are a rare coin, a winning lottery ticket, a coveted piece of sea glass.Your face filling smile and the way you work so hard are obsessions of mine….as is your perfect ratio of naughty to nice. Our family smiles so many more smiles because you are in it. We literally swoon daily. A friend in the Down syndrome world told me hearing his son say a new word is “Christmas Morning” Yes. You are Christmas morning my darling boy. Days with you are so much sweeter.  You’re doing life so eloquently perfect.

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You’re quiet coo of “yeeeaahhh” every single morning that wakes me with a smile. The way you grin ear to ear when I come into your room and urge for me to get you. Your quick but quality hugs complete with obligatory back pats before you run off to do all the things waiting to be done. The way you despise any type of clothing change but will oblige as long as you are serenaded. How you love music, dance and song like your mama. As Timberlake suggests, you “can’t stop the feeling.” Your adorable peg leg circular dance moves complete with arm rolls and head bops. The way you throw the most perfect dramatic tantrum that attempts to invoke anger but in contrast enamors me. How far your speech has come in just the few short months since your ear surgery. We hang on every” eee–iii—eee-iii–ooo,” every “all done” and all of hundreds of times you attempt to sing “head shoulders knees and toes.” How you start to say mama but dissolve into giggles. How you push Calvin out of the way when you feel you’re lacking in attention and how the two of you play chase together like true brothers do. The way you unsuccessfully attempt to be gentle as you put a blanket on the baby and the way you sweetly kiss him being careful not to get too close. The way you don’t ever ever stop and how you keep us forever young and engaged. We cannot be complacent with you . We love how it’s not allowed.

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We have always believed in you  and at the very same time we  thought we had to prepare ourselves. For what I’m not sure? You do nothing but exude joy to every single person you meet.

So now I fight for you because a life without you in it seems unfathomable. It is all so very worth it… and it is not even despite the hard work but because of it. I honestly believe that the rest of the world is missing out and that we are winning at a better life because we have you in it….So, on your second birthday I still protect you with a ferocity I have never known . Only now it is not just because I’m your mom but because your worth exceeds my wildest dreams. I am so extraordinarily proud of what your life has done to this world and I love you with every piece of my soul.  Happy Birthday Baby.

 

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